Aboriginal and Torres Strait Island people’s data: looking at the facts through a different lens

Indigenous data sovereignty and governance raises its own special issues:

Nature Medicine correspondence on the Australian TBI National Data

project from NTRI authors and others. Image: Danielle Mate

A traumatic brain injury project led by Monash University, guided by Aboriginal and Torres Strait Islander researchers and traumatic brain injury (TBI) patients, is creating a first for data collection, analysis and reporting.

by Anne Crawford

The Monash-led Australian Traumatic Brain Injury National Data (ATBIND) Project has for a year worked towards generating an overall epidemiological profile for moderate to severe traumatic brain injury (TBI) and developing national clinical quality indicators. Incorporating Indigenous knowledges and Aboriginal and Torres Strait Islander engagement is a central and revolutionary part of this registry-based project.