CaRE in action: patients key to blood cancer lobbying success: Rare Disease Day feature

L-R: Patient advocate Ken and researcher Professor Andrew
Perkins talk about the experience of living with the illness and
the challenges of research into the disease. Video (2:19 mins)

Part of our special series for Rare Disease Day featuring patient advocates and CCS researchers  

Clinician-scientist Professor Andrew Perkins, who heads the Blood Cancer Genomics team at the ACBD, has for 12 years researched myeloproliferative neoplasms (MPNs). MPNs are a diverse group of chronic blood cancers. Myelofibrosis (MF) is at the severe end of the spectrum. 

Central Clinical School participates in Rare Disease Day 2022

See video featuring patient advocates and CCS researchers

Hear from patient advocates and medical researchers as part of the Central Clinical School Consumer and Researcher Engagement (CCS CaRE) program for 28 February Rare Disease Day 2022. The diseases we talk about are Myeloproliferative Neoplasms, Autoimmune Encephalitis,  Friedreich's Ataxia, Visual Snow, Primary Immunodeficiency and brain cancer, including glioblastoma. We will be publishing our complete playlist on 28 February and will update this description with a link to the playlist.

See more:

• www.monash.edu/medicine/ccs/community-engagement
• www.rarediseaseday.org/countries/australia/