Central Clinical School participates in Rare Disease Day 2022

See video featuring patient advocates and CCS researchers

Hear from patient advocates and medical researchers as part of the Central Clinical School Consumer and Researcher Engagement (CCS CaRE) program for 28 February Rare Disease Day 2022. The diseases we talk about are Myeloproliferative Neoplasms, Autoimmune Encephalitis,  Friedreich's Ataxia, Visual Snow, Primary Immunodeficiency and brain cancer, including glioblastoma. We will be publishing our complete playlist on 28 February and will update this description with a link to the playlist.

See more:

• www.monash.edu/medicine/ccs/community-engagement
• www.rarediseaseday.org/countries/australia/

Improving the lives of people with Primary Immune Deficiency

Dr Emily Edwards

Dr Emily Edwards is committed to helping people, in particular those living with a disorder called 'Primary Immune Deficiency', or PID. Her research, in Monash University's Department of Immunology and Pathology, is on the impact of genetic mutations on B cell differentiation and function in patients with primary immunodeficiencies.

She has recently been elected Vice-President of Australia Patient Immunodeficiency Patient Support (AusPIPS) Inc., a not-for-profit registered charity, formed by a collective of people who either suffer from or care for others with PID, to provide advocacy, medical advice and support for PID patients on a voluntary basis.

SAVE THE DATE: Primary Immunodeficiencies Symposium this October

Dr Emily Edwards will
host the symposium

October 11^th sees the second annual symposium of the Jeffrey Modell Foundation (JMF) Centre for Primary Immunodeficiencies Melbourne, hosted by our own Dr Emily Edwards. The event theme is ‘Bridging Research and Care for Patients’, and it promises to provide stimulating content relevant to researchers in immunology, infectious diseases, and gastrointestinal medicine among others.

The Department of Immunology and Pathology’s A/Prof Menno van Zelm serves as the Director of the JMF Centre Melbourne, and Dr Emily Edwards is acting as conference host. Emily’s work focuses on investigating the impact of genetic mutations on B cell differentiation and function in patients with primary immunodeficiencies. She’ll be presenting on flow cytometry approaches to diagnosis and identification of prognostic markers for the development of non-infectious complications in primary immune deficiencies.

Photo of the week: Jeffrey Modell Centre Opening Launch!

The opening launch of the Jeffrey Modell Foundation Centre for Primary Immunodeficiencies Melbourne was held on the 14th June 2018. The plaque is being unveiled here by various community and health care provider representatives

A full gallery of photos from the day can be found here.
For more information on the JMF Centre Melbourne, please visit their website www.jmf-melbourne.com

Invitation to Jeffrey Modell Immunodeficiencies Centre launch – 14 June 2018

You are invited to the opening symposium for the Jeffrey Modell Foundation (JMF) Immunodeficiencies Centre, hosted by Monash University at the Alfred Centre.

To register follow the link and enter the code JMF18. See more detail below.